Some people do a “30 things to do before I turn 30” list, well, I’m a little late for that since I’ll be 30 in a month. When I was 15, I did make a goal to visit all of the continents before I was 30. I made it to 5 out of the 7 before… Continue reading 30 Things to Do While I’m 30
Category: Chronic Pain
I’m Not Your Inspiration
The posts are all over the internet, giving people warm, fuzzy feelings. A grocery employee squishes a loaf of bread and the patron writes a letter to the grocery, but she isn’t angry, she praises the grocery for hiring an Autistic employee. A man buys a cake and asks for something written on it, but when an… Continue reading I’m Not Your Inspiration
Five Years
This is a picture of me, five years ago. Five years ago, I had a surgery on my arm that was supposed to stop the tingling from a pinched nerve and prevent nerve damage. Five years ago, that surgery damaged my nerves and sent my autonomic nervous system into a tailspin. Five years later, I’m… Continue reading Five Years
Rare Disease Day – All About Stickler Syndrome
General Information The rare disease I live with is Stickler’s Syndrome, Type III (formerly hereditary arthro-ophthalmopathy) as a result of a mutation of the COL11A2 gene. Because of a genetic flaw, my collagen strand is weaker than normal. This affects hearing, vision, facial development, and joints. Stickler Syndrome is so rare that it doesn’t even have… Continue reading Rare Disease Day – All About Stickler Syndrome
Goodbye Gallbladder, Hello Trust
Remember the nausea and related problems that contributed to my medical leave of absence in February? Turns out it wasn’t the flu, an IBS flare-up, or even another kidney stone. As my symptoms continued and even became more severe I started seeking some answers and thus some help. My gastroentestinologist did a few tests including an EGD which showed… Continue reading Goodbye Gallbladder, Hello Trust
The Effect of the Positive
I’m not the only one who is doing the April challenge to do something every day, there are others, and one got an interesting response on a post with pictures of some beautiful flowers she had photographed. The response said simply, “looking at flowers does not stop the pain.” The blogger had her own response,… Continue reading The Effect of the Positive
Photojournal April 16 – 20
April 16: Fish are hard to photograph, but here are two of the fish who live in my room – Hope III (female Betta) and Tuberosity (the cory cat, aka Tubby). I had to do a major cleaning of my fish tank because I noticed I had Planaria Worms, a non-parasitic worm that lives in… Continue reading Photojournal April 16 – 20
Photos of Enjoyment – April 6-9
April 6: After my mom bought a pie crust, disappointing my newly found skills at pie crust making, I decided to make a crust and turn it into ickles. Ickles are a pie crust rolled into a rectangle, covered with a layer of brown sugar and cinnamon, rolled up, and baked. April 7: After experiencing… Continue reading Photos of Enjoyment – April 6-9
When Good Plans Go Bad
It can be frustrating when you have ideas for your life that just don’t work out how you planned. As part of academic advising, I had things all planned out, I knew what classes I was going to take when. In spring of 2013, I would graduate with a Bachelor degree in Neuroscience. Everything looked… Continue reading When Good Plans Go Bad
The Liebster Award
I am incredibly honored to have recieved the Liebster Blog Award from Chris Dean who blogs at Life Your Way. “Liebster” is German and means favorite or beloved. The point of the award is that it is given to blogs that are somewhat less known. I’ve noticed this among other blog awards around, but never… Continue reading The Liebster Award